Advocacy Groups

When you're looking for information or support about conditions of the nervous system, there are many advocacy organizations and websites that can provide you with information on the conditions, treatment, and research. Here are a few:

National Multiple Sclerosis Society
Through its network of chapters nationwide, the Society promotes research, educates, advocates on critical issues, and organizes a wide range of programs, including support for those who are newly diagnosed and those living with MS.

Multiple Sclerosis Association of America
MSAA is a national nonprofit organization whose mission is to enrich the quality of life for everyone affected by MS. MSAA provides ongoing support and direct services to these individuals with MS and the people close to them. MSAA also serves to promote greater understanding of the needs and challenges of those who face physical obstacles.

Brain Injury Association of America
The Brain Injury Association of America (BIAA) is the country’s oldest and largest nationwide brain injury advocacy organization. Their mission is to be the voice of brain injury. Through advocacy, education and research, they bring help, hope and healing to millions of individuals living with brain injury, their families and the professionals who serve them.

National Stroke Association
National Stroke Association’s mission is to reduce the incidence and impact of stroke by developing compelling education and programs focused on prevention, treatment, rehabilitation and support for all impacted by stroke.

Alzheimer’s Foundation
The Alzheimer's Foundation of America was founded by a consortium of organizations to fill the gap that existed on a national level to assure quality of care and excellence in service to individuals with Alzheimer's disease and related illnesses, and to their caregivers and families. Their mission is to provide optimal care and services to individuals confronting dementia, and to their caregivers and families—through member organizations dedicated to improving quality of life.

ALS Association
Established in 1985, The ALS Association is the only non-profit organization fighting Lou Gehrig’s Disease on every front. By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure. The Association leads the way in research, patient and community services, public education, and advocacy — giving help and hope to those facing the disease. The Association’s nationwide network of chapters provides comprehensive patient services and support to the ALS community. The mission of The ALS Association is to lead the fight to cure and treat ALS through global cutting-edge research, and to empower people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.

 

Disease Awareness

PBA

A variety of neurological diseases and brain injury can cause pseudobulbar affect, or PBA. PBA is characterized by involuntary, sudden, and frequent episodes of laughing and/or crying. PBA episodes typically occur out of proportion or incongruent to the patient's underlying emotional state. It is believed that PBA outbursts result from a "short circuit" in the brain caused by conditions such as multiple sclerosis (MS), amyotrophic lateral sclerosis (ALS), stroke, dementia and traumatic brain injury, to name a few. PBA can have a debilitating impact on the lives of patients, caregivers and loved ones. For more information about PBA, please visit http://www.pbainfo.org/.

Patient Assistance

If you live in the United States and cannot afford your medication, you may qualify for help through an Avanir Patient Assistance Program that reimburses part, or all, of your medication costs.

For more information on Avanir patient assistance programs, please visit the NUEDEXTA website.